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AMD IBI Dataset

Learn about the precise description of AMD disease pathobiology by using AMD genetic risk factors as sentinels for specific RPE signaling pathways and for changes in RPE physiology.

Details

Here is the AMD Integrative Biology Initiative dataset demographics summary. If you want to access full dataset information, please follow our access guideline below.

Sex
Female36 participants
Male37 participants
Age
51–609 participants
61–7041 participants
71–8023 participants
Marital Status
Divorced6 participants
Married55 participants
Never Married4 participants
Widowed8 participants

Access and License Information

Restricted Access

This is Controlled Access Data. You must create an account and submit a Data Agreement User (DUA). Learn more about the controlled access data and process.

To apply for access to the AMD Integrative Biology Initiative, please provide the following documents when requesting an account (Submit Here):

  • Biographical Sketch (short version is encouraged), Curriculum Vitae, or Resume
  • Research Proposal (three-page limit) including:
    • Descriptive title
    • Types of information being sought
    • Detailed description of proposed project including timeline
    • Data Management and Sharing Plan
      • What data will you collect or create? What documentation and metadata will accompany the data?
      • What tools, software, and/or code are required to access or manipulate the data?
      • What standards will be applied to the data and metadata?
      • How will you share the data? Are any restrictions on data sharing required?
      • What data will be shared back with NEI after publication/final report?
      • Who will be responsible for data management? What resources will you require?
  • List of all the data accessors from your lab/Institute (Include Full Name, Email, and Country of the accessor)
  • IRB Determination, if applicable

Other Resources

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